Wednesday, November 10, 2010

October Did Not Kill Me

...although it damn sure tried to.

Hi, my name is GasStationCappuccino, and I am peeking out from my hidey-hole.

It's been a helluva time.

So without much commentary, here are the things that have tried to kill me, but have not succeeded, since I last posted.

Leigh's behavior has been gathering momentum on her downhill slide.  She has spent 20 of the last 30 days in a local acute care psychiatric facility for the following:  suicidal thoughts, threats, poetry and art; and increasing aggression directed at everyone.  She was home for three days before the state's mobile crisis unit, accompanied by two police cars showed up at our house to take her back for another stay.  She's been home for five days now, and has been a little better, but her "better" starting to show some wear, tear, and cracking around the edges.

My husband spent a weekend in the hospital after his blood pressure shot way up into the triple digits (top and bottom number) due to stress.  The good news is that his heart is very healthy.  The bad news is that the craziness at home is making him sick.

We've ridden the "can we please FINALLY get some long term help for Leigh" roller coaster, and finally, today, after TEN years, found out that she has been approved for residential treatment, which means she'll be leaving to move into a long-term psychiatric care facility very soon. The problem is that the closest facility is about three hours away.  The best one is five hours.  So do we take the "easier on us" three hour drive or the "has better programs but is five hours away" one? 

My mom, who has no medical coverage, no job and was denied disability (Lupus and Sjogren's), was recently diagnosed with myelodysplastic syndrome, which basically means that her bone marrow has given up. The first line treatment is a series of shots that are supposed to kick start the sleepy marrow.  The shots are $2250 each.  They are given every two weeks for around six months.  If they don't work, the next two steps are regular blood transfusions and then a marrow transplant. Remember-- no insurance here. Definitely not good news.

So this will likely be her last Christmas.  And Leigh will be in residential, which is where she needs to be, but won't be able to be with her grandma, who is one of the few people she actually likes, relates to and respects on this earth. 

Danae has worked very hard at being mean to everyone.  Dawn and her Dumbass were both working for about three weeks before they both got fired.  They're still living on other people's sofas and generally making nuisances of themselves. 

The babies are amazing and growing and happy.  And we still have made no official decision.  Social Services has to decide something before December 28, as that is MoMo's "one year in care" anniversary.

My teaching schedule changed three weeks into the school year (not technically October), but the kids who had the easier teacher before me have been driving me nuts. 

Hubby works weird hours and I'm doing way more single parenting than I want to, but we need the paycheck.  And since he works retail, him getting Christmas off without a major act of God is something I'm already worrying about. 

I realize that nothing worth having is easy, but I'm starting to lose track of what it is I want to have. 


  1. So your mom needs to reach out to the drug company that manufactures the medication. I work with specialty drugs and almost every single one has a patient assistance program where they provide free drug to patients that meet financial criteria and are uninsured or underinsured. The issue is that anti-kickback laws mandate that these programs cannot be typically the assistance is not offered unless the patient asks.

  2. Seems like the five-hours away place would be better overall for Leigh, doesn't it? I imagine you'd still visit just as often. How do prices compare? Maybe that's another consideration. Hang in there.


If you are an adoptive parent or have one in your family somewhere, talk to me. I could use some insanity that does NOT call me mom!!